Found via BB, this Wired article on autism:Should autism be treated? Yes, says Baggs, it should be treated with respect. "People aren't interested in us functioning with the brains we have," she says, because autism is considered to be outside the range of normal variability. "I don't fit the stereotype of autism. But who does?" she asks, hammering especially hard on the keyboard. "The definition of autism is so fluid and changing every few years." What's exciting, she says, is that Mottron and other scientists have "found universal strengths where others usually look for universal deficits." Neuro-cognitive science, she says, is finally catching up to what she and many other adults with autism have been saying all along.
Baggs is working on some new videos. One project is tentatively titled "Am I a Person Yet?" She'll explore communication, empathy, self-reflection — core elements of the human experience that have at times been used to define personhood itself. And at various points during the clip, she'll ask: "Am I a person yet?" It's a provocative idea, and you might find yourself thinking: She has a point.
It's an amazing article, one that rocked me. Take a look.
... I should say, too, that there is a ton of precedent for scientists catching up to what a stigmatized group has been saying all along: For a long time, people of color were not considered people by scientists (and yes, that does make me want to put scientists in quotation marks). Neither were people with disabilities. People with HIV/AIDS were consistently coming out ahead of the (really bad) scientific research that was being done in the early and mid 1980s.
I suspect that this will turn out to be similar - the biases and blind spots of the people doing the science are slowly being torn away, only to reveal a truth that flies in the face of decades of established "truth."
My questions: Why does this keep happening? Doesn't science as an institution need to interrogate itself as to the presence of a very disturbing pattern of events? What about the vaunted "scientific method?"
Showing posts with label autism. Show all posts
Showing posts with label autism. Show all posts
Wednesday, February 27, 2008
[Autism] "Not damaged. Not dysfunctional. Just different."
Posted by
Dennis
at
6:43 PM
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Labels: autism
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